Callie had a restful night last night. She slept well and got pain medicine when needed.

She’s had more pain today and we’ve been working to find the right combination of medicine that will keep her pain under control.

We also started her on tube feedings today. She’s had a hard time adjusting to them, but we understand from the nurses that that’s not unusual. They’re working with the new tube to make sure she’s comfortable during the feedings.

Right now, our tentative plan is to feed her via the G-tube during the night and allow her to eat by mouth during the day.

When Callie was put on TPN through her PICC line, her lungs improved as well as her ability to swallow (although she’s still unable to take all her nutrients by mouth). Callie also gained 2.5 lbs in just over a week after starting the TPN! She’s finally hit that ideal third percentile on the growth chart and she’s had a lot more energy.

We’re hoping she can come home by the middle of next week. And we feel a lot better knowing that we now have a way to give her the nutrition she needs.