“In my dreams, I can walk.” Those were Callie’s words to Nathan recently as he was getting her out of bed to start the day.
When kids have asked Callie why she can’t walk, she’s always said, “Because it’s the way I’m made.” That’s now been replaced with, “Because it’s the way I’m made……and I don’t like it.”
When Callie was diagnosed with SMA 5 years ago, Nathan and I were determined to do everything within our power to give her as normal a life as possible. We did for a while, but it’s gradually gotten harder to do. We knew she would one day gain the sad realization of how physically limited she is. We knew this disease would destroy her body and eventually take her life. What we didn’t know, and had come to fear in recent months, was that this disease might also destroy her spirit.
But this month, Callie told us otherwise. For her entire life, she’s watched all her brothers play soccer and flag football for a local Upward sports league. She’s always watched the cheerleaders intently and announced to us that this year, she wanted to be one. If anyone other than Callie had suggested this idea, we would’ve emphatically said no. We wouldn’t want her facing the sadness of not being able to do the things the other girls can do. We wouldn’t want her having to answer the constant questions that come from curious children — “How can you cheerlead if you can’t walk?”, “How do you take a shower?”, “How do you go up and down stairs?”, “Can you go to school?”
But Callie’s brave. She’s not like us. She’s gone to her practices and had her first game this past Saturday. She doesn’t care that she’s too weak to lift her arms in the air, much less her pom-poms, or that she can’t move her legs, or that she’s always a few motions behind the other girls.
When we got to the field Saturday, Callie looked at us and said, “I’ve been waiting for this my whole life!”